National Spinal Cord Injury Registry of Iran (NSCIR-IR) � a critical appraisal of its strengths and weaknesses

Sharif-Alhoseini, M. and Azadmanjir, Z. and Sadeghi-Naini, M. and Ghodsi, Z. and Naghdi, K. and Mohammadzadeh, M. and AzarHomayoun, A. and Zendehdel, K. and Khormali, M. and Sadeghian, F. and Jazayeri, S.B. and Sehat, M. and Pirnejad, H. and Benzel, E.C. and O'Reilly, G. and Fehlings, M.G. and Vaccaro, A.R. and Rahimi-Movaghar, V. (2019) National Spinal Cord Injury Registry of Iran (NSCIR-IR) � a critical appraisal of its strengths and weaknesses. Chinese Journal of Traumatology - English Edition, 22 (5). pp. 300-303.

[img] Text
1-s2.0-S1008127519300045-main.pdf

Download (601kB)
Official URL: https://www.scopus.com/inward/record.uri?eid=2-s2....
DOI: UNSPECIFIED

Abstract

The National Spinal Cord Injury Registry of Iran (NSCIR-IR) is a not-for-profit, hospital-based, and prospective observational registry that appraises the quality of care, long-term outcomes and the personal and psychological burden of traumatic spinal cord injury in Iran. Benchmarking validity in every registry includes rigorous attention to data quality. Data quality assurance is essential for any registry to make sure that correct patients are being enrolled and that the data being collected are valid. We reviewed strengths and weaknesses of the NSCIR-IR while considering the methodological guidelines and recommendations for efficient and rational governance of patient registries. In summary, the steering committee, funded and maintained by the Ministry of Health and Medical Education of Iran, the international collaborations, continued staff training, suitable data quality, and the ethical approval are considered to be the strengths of the registry, while limited human and financial resources, poor interoperability with other health systems, and time-consuming processes are among its main weaknesses. © 2019 Chinese Medical Association

Item Type: Article
Additional Information: cited By 1
Uncontrolled Keywords: Article; data accuracy; data completeness; data consistency; data interoperability; data quality; human; Iran; medical education; practice guideline; register; self evaluation; spinal cord injury; staff training; timeliness (data)
Subjects: Surgery
Divisions: Faculty of Medicine > Clinical Sciences > Department of Surgery
Depositing User: ART . editor
Date Deposited: 01 Jan 2020 12:20
Last Modified: 01 Jan 2020 12:20
URI: http://eprints.kaums.ac.ir/id/eprint/4441

Actions (login required)

View Item View Item